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Messages By: samantha72

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September 14, 2006, 7:16 am CDT

I need too much sleep!!!!



Hello everyone.  Just registered, so new to this! 


My name is Samantha and I am 34 years old.  Since my early twenties I have needed an awful lot of sleep.  My main problem is that in England (where I'm from) the Doctors do not seem to want to help with this problem.  It is so so debilitating.  I have been sent to a Psychiatrist which was a complete waste of time.  I was medicated with Prozac for years until I finally weaned myself from them over 2 years ago.


My blood has been tested for Thyroid problems, Diabetes etc. they always come back negative, which is a very good thing but at the same time, what is causing this fatigue!  My Doctor has said to me in the past that it is not Narcolepsy but probaby ME/CFS but there is no test and nothing he can do, which is not helpful at all.  I have had Psychoanalysis for a few years (now stopped due to money) and she said that I sleep a lot because my brain shuts down as I'm trying to shut the world out.  Does that mean that my life has to be perfect before I wake up!!  I'm not buying that.


I now have a one year old son and am very worried that as he gets older he will resent me not having a lot of energy, I feel trapped and want a new body!!


I would be so so grateful for any view points on this.


Thanks, Sam


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September 14, 2006, 12:20 pm CDT

Struggling with Sleep Issues?

Quote From: mustbecrazy

I hit the wrong button, and it posted without a message!


As I was saying, does England have Sleep Specialists.  There are over 200 sleep disorders that make people extremely tired during the day.  My husband has sleep apnea AND restless leg syndrome.  I have Narcolepsy.  None of these could have been diagnosed or ruled out without a formal sleep study. 


In a sleep study, you stay overnight at the sleep facility.  They hook up monitors for EKG (heart), breathing, leg and arm movement, and some other things.  There is a camera that films in the dark.  This way, they can see how you sleep.  After the night time study, I stayed for a daytime study.  On every "nap", I fell asleep and had REM sleep within 5 minutes.


Look on the web under Narcolepsy...try the Provigil web site.  It is very informative.  There are other symptoms that go along with Narcolepsy.  Check them out.


I was misdiagnosed as a hypochondriac, and then with CFS (I have fibromyalgia, which is related).


I am now on Provigil, and it has changed my life. I am still sleepy sometimes, but I can function so much better.


All three of my boys have sleep disorders too...misdiagnosed with ADHD!  Two of my boys have restless leg syndrome, which was waking them up over 250 times a night!  The oldest one has Narcolepsy like me.  He is also on Provigil, and his grades have gone way up since starting on it.  Adderall made him so shakey, he could hardly play his trumpet.


I would encourage you to seek out a sleep specialist, wherever you can find one...make a trip to the United States if you have to.  Although, I thought Europe was ahead of the United States on using new drugs...our government puts so many regulations on getting them approved for use in the US.


Good Luck...Becky

Thank you for your reply.  I will find a sleep centre and try and talk my GP into referring me.   I try very hard to just cope with it but on days like today it is hard when I am nothing more than a zombie when awake.  It is very frustrating to go to bed and wake up in the morning and feel like you haven't slept.


It must be very hard for you all to cope, I admire you.


Thanks again.




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